Outpatient Database for Wales (OPDW)
The aim of the OPDW is to identify children and young people with cerebral palsy (CP) and estimate its prevalence using routinely-collected health care data from England and Wales, United Kingdom. The sample consists of anonymized health records for children and young people from birth to 25 years of age, including data from the National Health Service (NHS), General Practitioner records, inpatients, outpatients, and national mortality records. CP cases were identified using specific diagnostic codes, and the study found similar ascertainment rates and prevalence estimates in both countries.
Study design
Registry, Cohort - clinical
Number of participants at first data collection
7,113 (English participants)
5,218 (Welsh participants)
Age at first data collection
Birth - 25 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2004
Primary Institutions
Cardiff University
Swansea University
Profile paper DOI
Funders
Economic and Social Research Council (ESRC)
Health and Care Research Wales
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Census data
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
