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Adult Eastern Caribbean Health Outcomes Research Network Cohort Study (A-ECHORN)
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Sample details

A-ECHORN is designed to investigate the individual, familial, and environmental factors associated with cancer, diabetes, and heart disease in the Caribbean region. Recruited participants are at least 40 years old, live in Barbados, Trinidad and Tobago, Puerto Rico or the US Virgin Islands, speak English or Spanish, and have a reliable address where they have resided for at least 10 years. At Wave one in 2013, over 2900 participants were included. Participants are followed up every 4 to 5 years.

Study design
Cohort

Number of participants at first data collection

2,961 (participants)

Age at first data collection

≥ 40 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adults
Caribbean region
Dataset details
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Countries

Barbados, Puerto Rico, Trinidad and Tobago, Virgin Islands (U.S.)

Year of first data collection

2013

Primary Institutions

University of Puerto Rico (Universidad de Puerto Rico, UPR)

University of the Virgin Islands (UVI)

University of the West Indies Cave Hill (UWI Cave Hill)

University of the West Indies St. Augustine (UWI St. Augustine)

Yale University

Links

echorn.org/echorn-cohort-study

echorndata.org/Login

Funders

National Center for Advancing Translational Sciences (NCATS)

National Institute on Minority Health and Health Disparities (NIMHD)

Ongoing?
Yes

Data types collected

mentalHealthData
Quantitative data collection
  • Activity log (e.g. food, sleep, exercise)
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • None
Features

Engagement

  • Participant or community advisory groups
  • Community engagement
  • Keywords

    Biological samples/biospecimens
    Chronic illness
    Diet and nutrition
    Health behaviour
    Healthcare access and use
    Noncommunicable diseases
    Social networks and relationships
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