Australian Mesothelioma Registry (AMR)
The AMR is intended to help the Australian Government develop policies to best deal with the asbestos still present in Australia's buildings and environment, with the aim of reducing mesothelioma in the future. Participants include all consenting patients diagnosed with mesothelioma in Australia since 1 July 2010 who are physically and mentally able to participate, around 10,000 people. Baseline questionnaire and interview data are collected, and participants are followed longitudinally through linked mortality and cancer registries.
Study design
Registry
Number of participants at first data collection
9,347 (reported mesothelioma cases as of 2022)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2010
Primary Institutions
Australian Institute of Health and Welfare (AIHW)
Cancer Institute of New South Wales (NSW)
Links
mesothelioma-australia.com/home/
aihw.gov.au/about-our-data/our-data-collections/australian-mesothelioma-registry-database-amr
Profile paper DOI
Not available
Funders
Safe Work Australia (SWA)
Ongoing?
Yes
Data types collected
- Interview – phone
- Secondary data
- Self-report questionnaire – paper or computer assisted
- None
- None
- Healthcare data
- Mortality data
Engagement
Keywords
