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Australian and New Zealand Dialysis and Transplant Registry (ANZDATA)
Australian and New Zealand Dialysis and Transplant Registry logo
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Sample details

The ANZDATA Registry is a registry based in Adelaide, Australia, which covers renal dialysis and kidney transplantation. It includes all patients treated with renal replacement therapy (RRT) throughout Australia and New Zealand, including over 38,000 individuals as of 2023. It has national coverage across both countries of all people treated with these therapies since 1963. Data is collected in two ways: the registry is notified within 30 days of key events (dialysis, transplantation, death, and loss of transplant function), and an annual cross-sectional survey is conducted of all patients at the end of each year.

Study design
Registry

Number of participants at first data collection

32,156 (Australian participants, as of 2023)

6,172 (New Zealand participants, as of 2023)

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
Patients treated with renal replacement therapy (RRT) throughout Australia and New Zealand.

Sample features

All ages
Organ transplant patients and donors
Patients and clinical populations
Dataset details

Country

Australia

Year of first data collection

1963

Primary Institutions

South Australian Health and Medical Research Institute (SAHMRI)

Links

anzdata.org.au/anzdata/

Funders

Australian Organ and Tissue Authority (OTA)

Australian and New Zealand Society of Nephrology (ANZSN)

Kidney Health Australia

Ministry of Health (Manatū Hauora)

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Secondary data
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Chronic kidney disease (CKD)
    Healthcare access and use
    Medical records
    Morbidity and mortality
    Organ donation and transplants
    Renal replacement therapy
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