The ANZDATA Registry is a registry based in Adelaide, Australia, which covers renal dialysis and kidney transplantation. It includes all patients treated with renal replacement therapy (RRT) throughout Australia and New Zealand, including over 38,000 individuals as of 2023. It has national coverage across both countries of all people treated with these therapies since 1963. Data is collected in two ways: the registry is notified within 30 days of key events (dialysis, transplantation, death, and loss of transplant function), and an annual cross-sectional survey is conducted of all patients at the end of each year.
Study design
Registry
Number of participants at first data collection
32,156 (Australian participants, as of 2023)
6,172 (New Zealand participants, as of 2023)
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
Patients treated with renal replacement therapy (RRT) throughout Australia and New Zealand.
Sample features
Country
Year of first data collection
1963
Primary Institutions
South Australian Health and Medical Research Institute (SAHMRI)
Links
Profile paper DOI
Funders
Australian Organ and Tissue Authority (OTA)
Australian and New Zealand Society of Nephrology (ANZSN)
Kidney Health Australia
Ministry of Health (Manatū Hauora)
Ongoing?
Yes
Data types collected
Engagement
Keywords