Australia and New Zealand Living Kidney Donation Registry (ANZLKD Registry)
The ANZLKD Registry was established in 2004 to provide information about the long-term health and well-being of individuals who donated a kidney for transplantation across Australia and New Zealand. Living donors are registered from all transplant units in Australia and New Zealand, contributing data prospectively. The registry included over 3,200 living donors in Australia from 2004-2013 and New Zealand from 2004-2012. As of 2024, 336 living kidney donors were included in the registry. Data are collected at pre-donation assessment, at donation, and annually post-donation.
Study design
Registry
Number of participants at first data collection
3,255 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2004
Primary Institutions
South Australian Health and Medical Research Institute (SAHMRI)
Profile paper DOI
Not available
Funders
Australian Government
New Zealand Government (Te Kāwanatanga o Aotearoa)
Ongoing?
Yes
Data types collected
- Secondary data
- Self-report questionnaire – online
- Self-report questionnaire – paper or computer assisted
- None
- None
- Healthcare data
- Mortality data
Engagement
Keywords
