Autism Phenome Project (APP)
The aim of the APP is to identify and describe different subtypes of autism. Participants include almost 400 children diagnosed with Autism Spectrum Disorder (ASD) and around 170 typically-developing children. Participants were recruited through the MIND Institute at the University of California, Davis, in the United States of America. Baseline assessment began in 2006 and there have been five waves of data collection: when the participants were 2 to 3.5, 3 to 5, 4 to 6, 9 to 12 and 15 to 19 years old. The APP includes the Girls with Autism—Imaging of Neurodevelopment (GAIN) cohort of 100 girls with ASD, which was initiated in 2014 to increase female participation in the APP.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
386 (participants with autism)
173 (participants without autism)
Age at first data collection
2 to 3 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2006
Primary Institutions
University of California, Davis (UC Davis)
Profile paper DOI
Funders
National Institute of Mental Health (NIMH)
University of California, Davis (UC Davis)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – unspecified
- None
- Magnetic Resonance Imaging (MRI)
- None
Engagement
Keywords
