Alzheimer's Disease Repository Without Borders (ARWIBO)
The primary aim of ARWiBo is to collect and publish all clinical, neuropsychological, EEG, neuroimaging, and biological data of patients with neurodegenerative diseases and healthy controls. Data were collected over 10 years by researchers at the Istituto di Ricovero e Cura a Carattere Scientifico (IRCCS) Fatebenefratelli in Brescia, Italy. The overall goal of ARWiBo is to contribute, through synergy with neuGRID, to global data sharing and analysis in order to develop effective therapies, prevention methods, and a cure for Alzheimer's and other neurodegenerative diseases. Follow-ups in the form of clinical evaluations occur on average every year.
Study design
Registry
Number of participants at first data collection
> 1000 (participants)
Recruitment is ongoing
Age at first data collection
20 - 90 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2001
Primary Institutions
National Centre for Alzheimer’s and Mental Diseases
Scientific Institute for Research, Hospitalization and Healthcare (Istituto di Ricovero e Cura a Carattere Scientifico)
University of Geneva (Université de Genève)
Profile paper DOI
reteneuroscienze.it/wp-content/uploads/2023/01/IRCCSFatebenefratelli_ARWIBO_AD_MCI.pdf
Funders
Ministry of Health (Ministero della Salute)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – unspecified
- Secondary data
- None
- Diffusion Tensor Imaging (DTI)
- Electroencephalography (EEG)
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- Positron Emission Tomography (PET)
- Single-photon emission computed tomography (SPECT)
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
