Adult Autism Spectrum Cohort - UK (ASC-UK)
ASC-UK engages adults on the autism spectrum and their relatives in research. The study recruited adults of all ages and abilities with an autism diagnosis from across England, Scotland, Wales and Northern Ireland. Relatives of autistic adults were recruited separately and were not required to have their autistic relative in the study. In 2015, over 300 adults on the autism spectrum and over 70 relatives or carers joined the study. By 2020, over 2000 autistic adults and over 800 relatives were included in the study.
Study design
Cohort - research programme
Number of participants at first data collection
2,219 (adults on the autism spectrum)
864 (relatives of adults on the autism spectrum)
Age at first data collection
≥ 18 years (adults on the autism spectrum)
≥ 18 years (relatives of adults on the autism spectrum)
Participant year of birth
Varied (adults on the autism spectrum)
Varied (relatives of adults on the autism spectrum)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2015
Primary Institutions
Newcastle University
Links
research.ncl.ac.uk/adultautismspectrum/
research.ncl.ac.uk/neurodisability/ourstudies/adultautismspectrumcohort-uk/
Profile paper DOI
Not available
Funders
Autistica
Ongoing?
Yes
Data types collected
- Interview – face-to-face
- Interview – phone
- Self-report questionnaire – paper or computer assisted
- Interviews or focus groups
- None
- Healthcare data
Engagement
Keywords
