AIDS Therapy Evaluation in the Netherlands (ATHENA)
The ATHENA cohort study aims to monitor and improve the health outcomes for over 25,000 human immunodeficiency virus (HIV) patients from all 26 HIV treatment centers across the Netherlands. Participants have been continuously recruited since the study’s inception in 1998. On 1 January 2017, 19,035 HIV-1-positive participants were known to be in HIV care: 18,824 were aged 18 years or older and 211 were below 18 years of age. Follow-up visits are conducted every 12 to 24 months, coinciding with the patients’ routine clinic visits for their HIV check-ups, where the data collected during these medical appointments serves as the follow-up information for the study.
Study design
Cohort - open, Cohort - clinical
Number of participants at first data collection
3,449 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
The HIV-infected population in the Netherlands.
Sample features
Country
Year of first data collection
1998
Primary Institutions
Stichting HIV Monitoring (SHM)
University of Amsterdam (Universiteit van Amsterdam, UvA)
Profile paper DOI
Funders
Dutch National Health Insurance Council
Ministry of Health, Welfare and Sport (Ministerie van Volksgezondheid, Welzijn en Sport, VWS)
National Institute for Public Health and the Environment (Rijksinstituut voor Volksgezondheid en Milieu, RIVM)
Ongoing?
Yes
Data types collected
- Secondary data
- Interviews or focus groups
- None
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
