Atypical Late Neurodevelopment in Autism

Sample details

The Atypical Late Neurodevelopment in Autism study aimed to determine how individual variation in brain development from childhood to adulthood is associated with variation in clinical course and outcome in autism. Beginning in 2002, the study recruited 140 male participants with autism spectrum disorder (ASD) and 75 age-matched typically developing participants from the United States of America. Participants were first assessed between 2003 and 2007 and followed up at five additional time points.

Study design
Cohort, Cohort - clinical

Number of participants at first data collection

140 (participants with ASD)

75 (typically developing participants)

Age at first data collection

Varied (participants with ASD)

Varied (typically developing participants)

Participant year of birth

Varied (participants with ASD)

Varied (typically developing participants)

Participant sex
Male

Representative sample at baseline?
No

Sample features

Autism Spectrum Disorder (ASD)

Control participants

Males

Typically developing

Dataset details

Country

United States of America

Year of first data collection

2003

Primary Institutions

University of Utah (Academic, United States of America)

University of Wisconsin-Madison (Academic, United States of America)

Links

nda.nih.gov/edit_collection.html

doi.org/10.1016/j.neuroimage.2021.118067

Profile paper DOI

doi.org/10.1186/s11689-024-09529-w

Funders

Autism Society of Southwestern Wisconsin (Third Sector, United States of America)

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) (Government, United States of America)

Hartwell Foundation (Research, United States of America)

National Alliance for Research on Schizophrenia & Depression (NARSAD) (now known as Brain & Behaviour Research Foundation; BBRF) (Third Sector, United States of America)

National Center for Advancing Translational Sciences (NCATS) (Government, United States of America)

Ongoing?
No

Data types collected

Quantitative data collection

Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
Interview – face-to-face
Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)

Qualitative data collection