Atypical Late Neurodevelopment in Autism
The Atypical Late Neurodevelopment in Autism study aimed to determine how individual variation in brain development from childhood to adulthood is associated with variation in clinical course and outcome in autism. Beginning in 2002, the study recruited 140 male participants with autism spectrum disorder (ASD) and 75 age-matched typically developing participants from the United States of America. Participants were first assessed between 2003 and 2007 and followed up at five additional time points.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
140 (participants with ASD)
75 (typically developing participants)
Age at first data collection
Varied (participants with ASD)
Varied (typically developing participants)
Participant year of birth
Varied (participants with ASD)
Varied (typically developing participants)
Participant sex
Male
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2003
Primary Institutions
University of Utah
University of Wisconsin-Madison
Profile paper DOI
Funders
Autism Society of Southwestern Wisconsin
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Hartwell Foundation
National Alliance for Research on Schizophrenia & Depression (NARSAD) (now known as Brain & Behaviour Research Foundation; BBRF)
National Center for Advancing Translational Sciences (NCATS)
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Ethnography or participant observation
- Diffusion Tensor Imaging (DTI)
- Functional magnetic resonance imaging (fMRI)
- Magnetic Resonance Imaging (MRI)
- None
Engagement
Keywords
