British Autism Study of Infant Siblings (BASIS)
Participating parents and their children were recruited from a volunteer database at the Birkbeck Centre for Brain and Cognitive Development. Infants could be enrolled in the study if they either had a first degree relative with Autism Spectrum Disorder (ASD), a first degree relative with diagnosed or probable ADHD, or no first-degree relatives with either diagnosis. In phases 1 and 2, the children recruited were only at elevated likelihood (EL) for ASD, whilst in phase 3, children are at EL for ASD, ADHD, or both. Phase 3 is known as BASIS-STAARS (STudying Autism and ADHD riskS). Phase 1 data collection ran from 2006-2015, phase 2 from 2009-2022, and phase 3 from 2013-2023, and some families have taken part in more than one phase.
Study design
Cohort
Number of participants at first data collection
104 (phase 1 participants)
143 (phase 2 participants)
300 (phase 3 participants)
Recruitment is ongoing
Age at first data collection
Birth (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2006
Primary Institutions
Birkbeck, University of London
Profile paper DOI
Not available
Funders
Autism Speaks
Autistica
European Commission
European Union Horizon 2020 Research and Innovation Program
Innovative Medicines Initiative (IMI)
Ongoing?
Yes
Data types collected
- Interview – unspecified
- Self-report questionnaire – online
- Self-report questionnaire – paper or computer assisted
- Interviews or focus groups
- None
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
