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Center for Applied Genomics biobank (CAG biobank)
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Sample details

The CAG Biobank, established in 2006, is a large and diverse pediatric biorepository, hosting around 600,000 biological samples and including more than 130,000 patients and family members from the Children's Hospital of Philadelphia (CHOP) in Philadelphia, United States of America. The database contains de-identified longitudinal information about visits, diagnoses, medical history, prescriptions, procedures, and lab tests extracted from electronic medical records of consented patients at CHOP. To date, it has recruited more than 100,000 children and 30,000 parents from CHOP and gathered an additional 450,000 samples through multiple collaborations.

Study design
Biobank, Cohort - clinical

Number of participants at first data collection

>100000 (children)

>30000 (parents)

Recruitment is ongoing

Age at first data collection

0 - 20 years (children)

≥21 years (parents)

Participant year of birth

Varied (children)

Varied (parents)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adolescents
Adults
Children and young people
Newborns, infants and babies
Patients and clinical populations
Dataset details

Country

United States of America

Year of first data collection

2006

Primary Institutions

Children's Hospital of Philadelphia (CHOP)

Links

research.chop.edu/center-for-applied-genomics

dbgap.ncbi.nlm.nih.gov/beta/study/phs001165.v1.p1/

Profile paper DOI
Not available

Funders

Children's Hospital of Philadelphia (CHOP)

National Institutes of Health (NIH)

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
  • Mortality data
Features

Engagement

  • None
  • Keywords

    Asthma
    Biological samples/biospecimens
    Childhood cancer
    Electronic health records
    Medical treatment
    Medication
    Neurodevelopmental disorders
    Paediatric data
    Prescriptions
    Psychiatric diagnoses
    Rare illnesses
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