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Cancer in Adolescents and Young Adults
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Sample details

"Cancer in Adolescents and Young Adults" is a multicenter, longitudinal study conducted among 215 adolescents and young adult patients with cancer aged 14 to 39 years. Patients completed a self-report measure of social functioning within the first 4 months of diagnosis and again at 12 months and 24 months later. Participating institutions included 3 paediatric care institutions (Doernbecher Children's Hospital [Portland, Oregon], The Children's Hospital of San Antonio [San Antonio, Texas], and Children's Hospital Los Angeles [Los Angeles, California]) and 2 university-affiliated adult care medical institutions (Oregon Health and Science University Hospital [Portland, Oregon] and Cancer Therapy and Research Center at the University of Texas Health Science Center at San Antonio [San Antonio, Texas]).

Study design
Cohort - clinical

Number of participants at first data collection

215 (participants)

Age at first data collection

14 - 39 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Cancer patients
Multi-site
Dataset details

Country

United States of America

Year of first data collection

2008

Primary Institutions

Hopelab Research (Research, United States of America)

Links
No website available

Profile paper DOI

doi.org/10.1002/cncr.30656

Funders

HopeLab Foundation (Third Sector, United States of America)

Ongoing?
No

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Secondary data
  • Self-completed questionnaire – unspecified
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • Patients, service users, lived experience involvement
  • Community engagement
  • Keywords

    Cancer
    Health and wellbeing
    Quality of life
    Social functioning
    Young adulthood
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