Childhood Cancer Observation Platform (CCOP)
CCOP is a nationwide infrastructure based on the French National Registry of Childhood Cancers (RNCE) and medico-administrative databases. Launched in 2013 under the auspices of the French Paediatric Oncology Society (SFCE), the CCOP integrates a large range of standardised data from multiple sources to support observational and interventional research in paediatric oncology. CCOP includes all incident cancer or intracranial tumour cases diagnosed in those under 15 years of age in mainland France registered in the RNCE since 2000 (∼1,700 new cases per year), amounting to 29,747 cases over the 2000–2016 period. The RNCE provides the CCOP with baseline and basic follow-up data, including administrative data, data on initial diagnosis and treatment, relapses and second childhood cancers before the age of 18 years, vital status and causes of death.
Study design
Registry, Biobank
Number of participants at first data collection
29,747 (participants from 2000 - 2016)
Recruitment is ongoing
Age at first data collection
> 15 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2000
Primary Institutions
National Institute of Health and Medical Research (Institut National de la Santé et de la Recherche Médicale, INSERM)
Profile paper DOI
Funders
Agence nationale de santé publique (Santé publique France, SPF)
Enfants, cancers et santé
French Agency for Food, Environmental and Occupational Health & Safety (Agence nationale de sécurité sanitaire de l'alimentation, de l'environnement et du travail, ANSES)
French National Cancer Institute (Institut National du Cancer, INCA)
French National Research Agency (ANR)
Ongoing?
Yes
Data types collected
- Secondary data
- None
- None
- Geographic, spatial & environmental data
- Healthcare data
- Mortality data
- Tax, income & benefit data
Engagement
Keywords
