CoIN Study: Covid-19 impact on wellbeing in families of children with rare genetic and neurodevelopmental disorders (CoIN)
The CoIN Study investigated the impact of the Covid-19 pandemic on mental health and wellbeing in families across the United Kingdom with children (aged 0-16 years old) who have rare genetic and neurodevelopmental disorders. 159 parents/carers completed the baseline survey in May-October 2020.
Study design
Cohort - primary caregiver and child
Number of participants at first data collection
159 (parents/carers)
Age at first data collection
0 - 16 years (child)
16+ years (parent)
Participant year of birth
2004 - 2020 (child)
Varied (parent)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2020
Primary Institutions
King's College London (KCL)
Profile paper DOI
Funders
Genetic Alliance UK
Ongoing?
Yes
Data types collected
- Interview – online
- Self-report questionnaire – online
- Interviews or focus groups
- None
- None
Engagement
Keywords
