CoIN Study: Covid-19 impact on wellbeing in families of children with rare genetic and neurodevelopmental disorders (CoIN)
The CoIN Study investigated the impact of the Covid-19 pandemic on mental health and wellbeing in a sample of around 200 parents of children with rare genetic and neurodevelopmental disorders from across the United Kingdom (UK). Participants were followed-up monthly during the UK coronavirus lockdowns from May 2020 to May 2021.
Study design
Cohort - primary caregiver and child
Number of participants at first data collection
219 (parents)
219 (children)
Age at first data collection
≥16 years (parents)
0 - 16 years (children)
Participant year of birth
Varied (parents)
2004 - 2020 (children)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2020
Primary Institutions
King's College London (KCL) (Academic, United Kingdom)
Profile paper DOI
Funders
Baily Thomas Charitable Fund (Third Sector, United Kingdom)
Genetic Alliance UK (Third Sector, United Kingdom)
Ongoing?
No
Data types collected
- Interview – online
- Self-completed questionnaire – online
- Interviews or focus groups
- None
- None
Engagement
Keywords
