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Danish Cerebral Palsy Follow-up Program (CPOP)
Danish Cerebral Palsy Follow-up Program logo
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Sample details

CPOP aims to monitor and track the quality of healthcare follow-up and interventions for children and young people with cerebral palsy or who are being evaluated for cerebral palsy. Participants include over 1,600 children aged 0 to 15 years who were born in Denmark after 2003 and have been evaluated for cerebral palsy. The cohort was established in 2010 and recruitment is ongoing. The study links participants' census and healthcare records and includes clinical assessment follow-ups until the participant is 15 years old.

Study design
Registry

Number of participants at first data collection

1,686 (participants as of 2024)

Recruitment is ongoing

Age at first data collection

0 - 15 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adolescents
Children and young people
Newborns, infants and babies
Patients and clinical populations
Dataset details

Country

Denmark

Year of first data collection

2010

Primary Institutions

Danish Regions

Links

cpop.dk/

sundk.dk/kliniske-kvalitetsdatabaser/landsdaekkende-klinisk-kvalitetsdatabase-for-opfoelgningsprogrammet-for-cerebral-parese-cpop/om-databasen/

doi.org/10.1016/j.pediatrneurol.2023.11.008

doi.org/10.1016/j.nexres.2025.100549

doi.org/10.1177/14034948231219825

Funders

Danish Clinical Registries (RKKP)

Lundbeck Foundation

Novo Nordisk Foundation

Ongoing?
Yes

Data types collected

neuroImagingData
dataLinkage
Quantitative data collection
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • Magnetic Resonance Imaging (MRI)
Linked or secondary data
  • Census data
  • Healthcare data
  • Medical birth registry
Features

Engagement

  • Patients, service users, lived experience involvement
  • Participant or community advisory groups
  • Community engagement
  • Keywords

    Birth records and measurement
    Cerebral palsy
    Clinical assessments
    Cognition
    Cognitive impairment and disorders
    Hearing
    Human development
    Motor function
    Movement disorders
    Neuroimaging
    Vision
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