deCODE Iceland
deCODE aims to compile a comprehensive collection of population data on genealogy, genotype and phenotypes in order to identify key genes linked to common diseases and identify targets for treatment. deCODE includes genotypic and medical data from over 160,000 participants in Iceland. It also collaborates with other institutions to gain access to medical data and genotypic data on half a million people worldwide. deCODE was founded in 1996 and includes longitudinal medical records, as well as the potential to link other forms of data.
Study design
Registry, Biobank
Number of participants at first data collection
160,000 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
No information available.
Primary Institutions
deCODE Genetics
Profile paper DOI
Funders
deCODE genetics
Ongoing?
Yes
Data types collected
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- None
- None
- Healthcare data
Engagement
Keywords
