Developing Intervention strategies to halt Progression of Autosomal Dominant Polycystic Kidney Disease (DIPAK)
DIPAK aims to describe the natural course of Autosomal Dominant Polycystic Kidney Disease (ADPKD) and identify risk factors for rapid disease progression. The study, founded in 2011, recruited participants aged at least 18 years who had a diagnosis of ADPKD from University Medical Centres in Groningen, Leiden, Nijmegen, and Rotterdam in the Netherlands. At baseline, over 600 participants were included in the study. Participants were followed initially on an annual basis and are now being followed up every 3 years.
Study design
Cohort - clinical, Cohort
Number of participants at first data collection
670 (participants)
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2011
Primary Institutions
Erasmus University Medical Centre (Erasmus MC)
Leiden University Medical Center (Leids Universitair Medisch Centrum, LUMC)
Radboud University Medical Center (Radboudumc)
University Medical Center Groningen (Universitair Medisch Centrum Groningen, UMCG)
Profile paper DOI
Funders
Dutch Kidney Foundation (Nierstichting)
Ongoing?
Yes
Data types collected
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – unspecified
- None
- None
- Healthcare data
Engagement
Keywords
