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Diabetes Study of Northern California (DISTANCE)
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Sample details

Participants in the sample were members of Kaiser Permanente Northern California (KPNC) which provides comprehensive medical services in the San Francisco Bay and Sacramento metropolitan areas. An ethnically stratified, random sample of 40,735 health plan members was selected from the Diabetes Registry of KPNC to receive the DISTANCE Survey. The DISTANCE survey was completed by 20,188 persons aged 30–75 at baseline. Of the 20,188 respondents, 4,524 (22%) had also responded to the prior Diabetes Registry Questionnaire in 1994-1997.

Study design
Cohort

Number of participants at first data collection

20,188 (participants)

Age at first data collection

30 - 75 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Diabetes patients
Patients and clinical populations
Dataset details

Country

United States of America

Year of first data collection

2005 (DISTANCE respondents)

1994 (Diabetes Registry Questionnaire respondents)

Primary Institutions

Kaiser Permanente

Links
No website available

Profile paper DOI

doi.org/10.1093/ije/dyn040

Funders

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

National Institutes of Health (NIH)

Ongoing?
No

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Interview – phone
  • Self-report questionnaire – online
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Diabetes
    Disease progression
    Ethnic disparity
    Health and wellbeing
    Health inequalities
    Healthcare access and use
    Minority groups
    Risk factors
    Socioeconomics
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