Danish Neuro-Oncology Registry (DNOR)
The DNOR is a clinical database that aims to support research and development in adult patients with primary brain tumours in Denmark. DNOR has registered clinical data on diagnostics and treatment of adult patients diagnosed with glioma in Denmark since January 1, 2009, which numbers approximately 400 patients each year. As of 2014, clinical data on over 2,000 patients have been reported in DNOR. The database collects data corresponding to four process indicators and five outcome indicators, including mortality after surgery, treatment after chemotherapy, and survival within one and two years after primary diagnosis.
Study design
Registry
Number of participants at first data collection
2,238 (participants as of 2014)
Recruitment is ongoing
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
Adult patients diagnosed with glioma in Denmark since 2009.
Sample features
Country
Year of first data collection
2009
Primary Institutions
Odense University Hospital (Odense Universitetshospital, OUH)
Profile paper DOI
Funders
Danish Health Authority (Sundhedsstyrelsen)
Ongoing?
Yes
Data types collected
- Secondary data
- None
- Magnetic Resonance Imaging (MRI)
- Healthcare data
- Mortality data
- Other government data
Engagement
Keywords
