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Dutch DataPain Study
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Sample details

The Dutch DataPain Study follows chronic pain patients who were referred to the pain clinic of Maastricht University Pain Centre in the Netherlands between 2003 and 2018. The cohort includes patients who were classified as chronic pain sufferers in accordance with the International Association for the Study of Pain criteria, defining chronic pain as pain experienced over a period lasting longer than 3 months. Patients were excluded if their chronic pain was cancer-related (or if informed consent had not been granted). At baseline, almost 60% of the patients were female and 40% above the age of 61. The patients have been followed up routinely and with questionnaires.

Study design
Cohort, Registry

Number of participants at first data collection

11,214 (participants)

Age at first data collection

8 - 96 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Chronic pain patients
Patients and clinical populations
Dataset details

Country

Netherlands

Year of first data collection

2003

Primary Institutions

Maastricht University Pain Center (Universitair Pijn Centrum Maastricht)

Links

maastrichtuniversity.nl/research/caphri/our-research/cohorts

doi.org/10.1111/papr.13274

Funders

No funding information available

Ongoing?
Yes

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Secondary data
  • Self-report questionnaire – online
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Biopsychosocial factors
    Chronic pain
    Clinical trials
    Disease
    Disease management
    Health and wellbeing
    Interventions
    Longstanding illness and disability
    Quality of life
    Treatment experiences and outcomes
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