Early Autism Risk Longitudinal Investigation (EARLI)
EARLI aimed to investigate the environmental risk factors for developing autism spectrum disorder (ASD). Pregnant women at 28 weeks or less gestation who had an autistic child were recruited from major metropolitan areas across four states, namely Philadelphia, Baltimore, Sacramento and the San Francisco Bay Area. At baseline, over 170 mother-baby pairs were recruited. The mother was followed through pregnancy and delivery, after which their babies were followed until 36 months after birth.
Study design
Cohort - primary caregiver and child, Cohort - birth
Number of participants at first data collection
177 (mothers)
177 (babies)
Age at first data collection
≥ 18 years (mothers)
Birth (babies)
Participant year of birth
Varied (mothers)
Varied (babies)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2009
Primary Institutions
Children's Hospital of Philadelphia (CHOP)
Drexel University
Johns Hopkins University (JHU)
Kaiser Permanente
Kennedy Krieger Institute
Profile paper DOI
Funders
Autism Centers of Excellence (ACE)
Autism Speaks
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
National Institute of Environmental Health Sciences (NIEHS)
National Institute of Neurological Disorders and Stroke (NINDS)
Ongoing?
No
Data types collected
- Activity log (e.g. food, sleep, exercise)
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Interview – phone
- Physical environment assessment (e.g. pollution, mould)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- Ethnography or participant observation
- None
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
