Extremely Low Gestational Age Newborns Study (ELGAN)
The ELGAN Study follows extremely low gestational age newborns (ELGANs), defined as babies born more than three months before the expected date of birth, to learn more about the causes of common medical problems and developmental difficulties typically faced. The study first enrolled 1,506 babies born before 28 weeks gestation at 14 sites, of which 1,201 (80%) survived to 2 years corrected age. The babies have been followed over time, at 2, 10, 15, 17, and 18+ years.
Study design
Cohort - birth
Number of participants at first data collection
1,506 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
2002 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2002
Primary Institutions
North Carolina Children's Hospital
University of North Carolina
Links
Profile paper DOI
Funders
No funding information available
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- None
- Cranial ultrasound
- Magnetic Resonance Imaging (MRI)
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
