Effective Perinatal Intensive Care in Europe cohort (EPICE)
The EPICE cohort is an area-based multinational cohort of over 9,500 still- or live-born infants between 22 + 0 and 31 + 6 weeks of gestation between 2011 and 2012. The cohort included participants from 19 regions in 11 European countries: Belgium, Denmark, England, Estonia, France, Germany, Italy, the Netherlands, Poland, Portugal, and Sweden. Eligible infants born very preterm were identified from medical records in obstetric and neonatal units. Qualitative and quantitative data has also been collected from parents and healthcare professionals on topics such as decision-making in neonatal intensive care units and the uptake of follow-up care.
Study design
Cohort - birth
Number of participants at first data collection
9,514 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
2011 - 2012 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2011
Primary Institutions
National Institute of Health and Medical Research (Institut National de la Santé et de la Recherche Médicale, INSERM)
Profile paper DOI
Funders
European Union (EU)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – unspecified
- Secondary data
- Self-report questionnaire – unspecified
- Interviews or focus groups
- None
- Healthcare data
- Medical birth registry
Engagement
Keywords
Consortia and dataset groups
