Effective Perinatal Intensive Care in Europe cohort (EPICE)
The EPICE cohort is an area‑based, multinational study of over 9,500 still‑ and live‑born very preterm infants (22 + 0 to 31 + 6 weeks’ gestation) recruited between April 2011 and September 2012 across 19 regions in 11 European countries. Infants were identified using obstetric and neonatal medical records, and the study also collected qualitative and quantitative data from parents and healthcare professionals on topics such as decision‑making in neonatal intensive care and the uptake of follow‑up care. The cohort has been followed longitudinally, with major follow‑ups conducted at 2 years’ corrected age and again at 5 years of age. The 5‑year follow‑up was conducted through the Screening to Improve Health in Very Preterm Infants (SHIPS) project, the dedicated long‑term follow‑up arm of EPICE, which provides extended data on children’s health, development, and healthcare utilisation. Through SHIPS, the EPICE cohort was reassessed between June 2016 and February 2017.
Study design
Cohort - birth, Cohort
Number of participants at first data collection
9,514 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
2011 - 2012 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2011
Primary Institutions
National Institute of Health and Medical Research (Institut National de la Santé et de la Recherche Médicale, INSERM) (Research, France)
Profile paper DOI
Funders
European Union (EU) (Government, Europe)
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – unspecified
- Secondary data
- Self-completed questionnaire – unspecified
- Interviews or focus groups
- None
- Healthcare data
- Medical birth registry
Engagement
Keywords
Consortia and dataset groups
