EPICure
EPICure is a series of studies of survival and later health among babies and young people who were born at extremely low gestations (from 22 to 26 weeks). Using hospital records, over 300 babies discharged from Neonatal Units (NNUs) in 1995 were identified using hospital records. This cohort was then followed up again at 30 months, 6, 11, 16, and 19 years. In 2006, the same recruitment method was carried out to identify a new 'EPICure 2' cohort of over 3,100 babies. All babies in the cohort were born premature, between 22 and 26 weeks gestation. The EPICure 2 cohort was followed up at 3 years.
Study design
Cohort - birth
Number of participants at first data collection
314 (EPICure children)
3,133 (EPICure 2 children)
Age at first data collection
Birth (participants)
Participant year of birth
1995 (EPICure children)
2006 (EPICure 2 children)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
1995 (EPICure cohort)
2006 (EPICure 2 cohort)
Primary Institutions
University College London (UCL)
Links
ucl.ac.uk/womens-health/research/neonatology/epicure
Profile paper DOI
Not available
Funders
Bliss
Medical Research Council (MRC)
PPP Healthcare (now known as Health Foundation)
Serono Laboratories UK
Ongoing?
Yes
Data types collected
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – paper or computer assisted
- None
- Magnetic Resonance Imaging (MRI)
- Healthcare data
Engagement
Keywords
Consortia and dataset groups
