Epilepsy in Papua New Guinea: a longitudinal cohort study
This study aimed to follow a cohort of children with epilepsy between the ages of 1 years and 18 years with epilepsy who attended Port Moresby General Hospital (PMGH) in Papua New Guinea. and document its nature and extent, associated comorbidities, access to treatment, the adequacy of seizure control, the quality of life and developmental opportunities and the difficulties faced by them and their families. Follow-up occurred monthly if the seizures were poorly controlled, or every 2–3 months for other children, depending on parents’ availability and the distance they lived from the hospital. The cohort consisted of just under 50 children with epilepsy.
Study design
Cohort - clinical
Number of participants at first data collection
47 (participants)
Age at first data collection
1 - 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
N/A
Primary Institutions
Royal Children's Hospital (RCH)
University of Melbourne
Links
No website available
Profile paper DOI
Funders
R.E. Ross Trust
Ongoing?
Yes
Data types collected
- Activity log (e.g. food, sleep, exercise)
- Interview – face-to-face
- Interview – online
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Interviews or focus groups
- None
- None
Engagement
Keywords
