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Epidemiology of Non-Motor Symptoms in Parkinson's Syndrome (EPIPARK)
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Sample details

The EPIPARK cohort was set up in 2010 to examine the specificity of non-motor symptoms presented in Parkinson's Disease. Screening questionnaires were sent out to a random selection of 10,000 inhabitants of Luebeck, Germany, aged 50 to 79 years in 2010. Of these inhabitants, the target was to obtain a cohort of differing health statuses to act as controls against the disease group. Approximately 6,000 completed questionnaires were returned, and over 600 were invited for an in-person examination. Follow-ups are conducted yearly for all participants.

Study design
Cohort

Number of participants at first data collection

5,718 (participants)

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
The population living in Lubeck, Germany, in 2010, aged 50 to 79 years.

Sample features

Population-based sample
Dataset details

Country

Germany

Year of first data collection

2010

Primary Institutions

University of Lübeck (Universität zu Lübeck)

Links

zbv.uni-luebeck.de/forschung/frueherkennung/epipark

neurogenetics-luebeck.de/research-sections/neuropsychiatric-epidemiology/epipark-team/

doi.org/10.1038/s41531-023-00551-8

Profile paper DOI

doi.org/10.1093/ije/dys202

Funders

German Research Foundation (Deutsche Forschungsgemeinschaft, DFG)

Ongoing?
Yes

Data types collected

neuroImagingData
mentalHealthData
Quantitative data collection
  • Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
  • Interview – face-to-face
  • Interview – phone
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • Cranial ultrasound
Linked or secondary data
  • None
Features

Engagement

  • Community engagement
  • Keywords

    Biological samples/biospecimens
    Cognitive ageing and decline
    Cognitive assessments
    Dementia
    Neuropsychiatric assessment
    Parkinson's disease (PD)
    Population-based
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