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Eurocat Northern Netherlands (Eurocat NNL)
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Sample details

Eurocat NNL is a population-based congenital anomaly registry covering Groningen, Friesland, and Drenthe in the Northern Netherlands from 1981 onwards. All pregnancy outcomes are covered and information is collected on genetic testing, prenatal diagnosis, and risk factors through parental questionnaires (response percentage around 80%), medical records, and pharmacy data. All children and foetuses with a congenital anomaly whose mother was a resident of Groningen, Friesland, or Drenthe at the time of birth are included. Registration is an ongoing process; children can be registered until 10 years after birth and at all gestational ages. Still births, miscarriages, and terminations of pregnancy are also included in the registry.

Study design
Registry, Cohort - open

Number of participants at first data collection

20,500 (participants)

Recruitment is ongoing

Age at first data collection

0 - 12 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Children and young people
Population-based sample
Dataset details

Country

Netherlands

Year of first data collection

1981

Primary Institutions

University Medical Center Groningen (Universitair Medisch Centrum Groningen, UMCG)

Links

umcgresearch.org/w/eurocat-northern-netherlands

umcg.nl/-/eurocat

Funders

Dutch Ministry of Health, Welfare, and Sport (VWS)

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – unspecified
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Congenital malformations
    Diagnostic information
    Infant mortality
    Longstanding illness and disability
    Population-based
    Pregnancy outcomes
    Risk factors
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