Extremely Preterm Infants in Sweden Study (EXPRESS)
EXPRESS aimed to determine the incidence of neonatal morbidity in extremely preterm infants and to identify associated risk factors. The study population comprised all live-born (gestational age of less than 26 weeks 6 days) and stillborn infants (gestational age between 22 weeks 0 days and 26 weeks 6 days) delivered extremely preterm in Sweden from April 1, 2004, to March 31, 2007. Terminations of pregnancy and infants born outside of Sweden and transferred to Sweden for neonatal care were not included in the sample. The mean age of mothers at delivery was 30.9 years, ranging from 14 to 46 years.
Study design
Cohort - birth, Cohort - clinical
Number of participants at first data collection
1,011 (participants)
Age at first data collection
Birth (participants)
Participant year of birth
2004 - 2007 (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2004
Primary Institutions
Lund University (Lunds Universitet)
Umeå University (Umeå Universitet)
Profile paper DOI
Funders
Government of the Kingdom of Sweden (Konungariket Sveriges regering)
National Board of Health and Welfare (Socialstyrelsen)
Swedish Research Council (Vetenskapsrådet)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Interview – phone
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- None
- Magnetic Resonance Imaging (MRI)
- Healthcare data
- Medical birth registry
- Mortality data
Engagement
Keywords
Consortia and dataset groups
