FinnGen is a public-private partnership combining genotype data with digital health record data for over 500,000 Finnish biobank participants. Whilst biobank samples have been collected and genotyped since the study began in 2017, health record data has been obtained from several national registries in Finland, with records beginning as early as 1953.
Study design
Biobank, Registry
Number of participants at first data collection
51,959 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1953 (linkage)
2017 (inception)
Primary Institutions
University of Helsinki (Helsingin yliopisto)
Profile paper DOI
Not available
Funders
Janssen Pharmaceutical Research & Development LLC
AbbVie
AstraZeneca
Biogen Inc.
Boehringer Ingelheim
Ongoing?
Yes
Data types collected
Engagement
Keywords