Girl Brain and Neuro-Development (Girl BAND)
The Girl BAND study aimed to examine trajectories of cognitive, behavioural, social–emotional, and brain development in child and adolescent females with fragile X syndrome (FXS) and their developmentally-matched peers. Participants included 65 girls with confirmed diagnosis of FXS and 52 girls in a comparison group. All participants were between the ages of 6 and 16 years at baseline and recruited from across the United States of America. Baseline assessment began in 2017 and participants were assessed three times in total, around 12 to 18 months apart.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
117 (participants)
Age at first data collection
6 - 16 years (participants)
Participant year of birth
Varied (participants)
Participant sex
Female
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2017
Primary Institutions
Stanford University
Links
med.stanford.edu/girlband.html
reporter.nih.gov/project-details/10576763
Profile paper DOI
Funders
Kelvin Foundation
Lynda and Scott Canel Fund for Fragile X Research
National Fragile X Foundation (NFXF)
National Institute of Mental Health (NIMH)
National Institutes of Health (NIH)
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Interview – online
- Self-report questionnaire – online
- None
- Magnetic Resonance Imaging (MRI)
- Near-infrared spectroscopy (NIRS)
- None
Engagement
Keywords
