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Health Outcomes of young People throughout Education Study (HOPE)
Health Outcomes of young People throughout Education Study logo
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Sample details

The HOPE study explores variation in special educational needs provision and its impact on health and education outcomes across multiple work packages. Data for several work packages was obtained from the ECHILD database, which links routinely collected administrative data on health and education for around 14,700,000 children and young people in England. Analyses were focused on primary school-aged children followed from year 1 to 6, born in a National Health Service (NHS) hospital in England, and having a birth admission recorded in the Hospital Episode Statistics from September 2002 onwards. Analysis was limited to outcomes recorded before the start of the COVID-19 pandemic. Novel data has also been collected from over 1,700 children and young people, parents and carers, and service providers across England as part of a further work package in the HOPE study.

Study design
Registry, Cohort - research programme

Number of participants at first data collection

1,714 (participants)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Children and young people
Healthcare workers
Parents
Registry
School-aged children
Dataset details

Country

England

Year of first data collection

2023

Primary Institutions

University College London (UCL)

Links

ucl.ac.uk/child-health/research/population-policy-and-practice-research-and-teaching-department/cenb-clinical-30

dev.fundingawards.nihr.ac.uk/award/NIHR202025

Funders

National Institute for Health and Care Research (NIHR)

Ongoing?
Yes

Data types collected

qualitativeData
dataLinkage
Quantitative data collection
  • Interview – unspecified
  • Secondary data
  • Self-report questionnaire – online
Qualitative data collection
  • Interviews or focus groups
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Education data
  • Healthcare data
  • Medical birth registry
Features

Engagement

  • Patients, service users, lived experience involvement
  • Participant or community advisory groups
  • Community engagement
  • Keywords

    Childhood
    Education
    Health and wellbeing
    Lived experience
    Qualitative research
    Service use
    Social participation
    Special educational needs (SEN)
    Sub-studies
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