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HealthTwiSt: The Berlin Twin Registry for Health Research
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Sample details

The Berlin Twin Registry began as a cross-sectional twin study in 1994 and over time developed into a longitudinal follow-up and resource for health research with over 1,700 twin pairs. Some twins have been participating in ongoing studies and others remain part of the registry while opportunities are underway. The ages of twins in the registry range from under 11 to over 71 years, and there is a combination of monozygotic and dizygotic twin pairs. Whenever possible, parents of twins are involved in studies as well.

Study design
Registry

Number of participants at first data collection

3,410 (participants)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Adults
Children and young people
Dizygotic and monozygotic twins
Parents
Dataset details

Country

Germany

Year of first data collection

1994

Primary Institutions

HealthTwiSt

Links

healthtwist.de/

doi.org/10.1375/twin.9.6.778

Profile paper DOI

doi.org/10.1017/thg.2012.95

Funders

HealthTwiSt

Ongoing?
Yes

Data types collected

Quantitative data collection
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Self-report questionnaire – unspecified
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • None
Features

Engagement

  • Community engagement
  • Keywords

    Biological samples/biospecimens
    Cardiovascular health and disease
    Coping strategies
    Disease
    Genetic analysis
    Genetics
    Hypertension
    Obesity
    Physical health
    Sub-studies

    Consortia and dataset groups

    COllaborative project of Development of Anthropometrical measures in Twins (CODATwins) project
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