The Hepatitis C Virus (HCV) Research UK Clinical Database and Biobank was established by HCV Research United Kingdom (UK), a consortium of leading stakeholders in the UK, including all the major adult and paediatric liver centres. The remit of HCV Research UK is to address critical gaps in our understanding of HCV. The clinical database and biobank included more than 10,000 patients from 3 UK countries (England, Scotland, and Wales) as of July 2015 who had attended a specialist HCV clinic for care/management of their HCV infection. The mean age at baseline was 48.5 years. Although most (58%) participants were aged 45-64 years, the cohort also included 85 children aged under 16 years. In total, 10,184 patients with past or current chronic infection were enrolled into the cohort through attendance at one of 56 specialist UK HCV clinics between March 2012 and July 2015. Almost all of the most populous parts of the UK are represented in the cohort, with most participants recruited from Yorkshire, London, the West Midlands, and Glasgow.
Study design
Biobank, Cohort - clinical, Cohort
Number of participants at first data collection
10,184 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2012
Primary Institutions
University of Birmingham (Academic, United Kingdom)
University of Glasgow (Oilthigh Ghlaschu) (Academic, United Kingdom)
University of Nottingham (Academic, United Kingdom)
Profile paper DOI
Funders
Medical Research Foundation (Third Sector, United Kingdom)
Ongoing?
Yes
Data types collected


Engagement
Keywords