Dutch Home Mechanical Ventilation Data Registry (HMV-NL)
The HMV-NL is a registry of all patients on home mechanical ventilation across different regions of the Netherlands, collecting treatment and outcome related data. With approximately 4,000 participants as of 2024, the registry includes a diverse cohort in terms of age, gender, and medical conditions such as neuromuscular disorders and chronic obstructive pulmonary disease. Participants are followed up every year to monitor and improve patient outcomes and quality of care.
Study design
Registry
Number of participants at first data collection
250 (participants)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
1992
Primary Institutions
Erasmus University Medical Centre (Erasmus MC)
Maastricht University Medical Center (Maastricht UMC+)
University Medical Center Groningen (Universitair Medisch Centrum Groningen, UMCG)
University Medical Center Utrecht (Universitair Medisch Centrum Utrecht, UMCU)
Profile paper DOI
Funders
Philips Research
The Netherlands Organisation for Health Research and Development (ZonMW)
VIVSOL
Vital Aire
Ongoing?
Yes
Data types collected
- Physical environment assessment (e.g. pollution, mould)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- None
- None
- None
Engagement
Keywords
