Improving the Experience of Dementia and Enhancing Active Life (IDEAL)
The IDEAL programme is a longitudinal cohort study of people with dementia (PwD) and primary carers (Carers) across Great Britain. The aim of the IDEAL programme is to identify what helps people to live well or makes it difficult to live well in the context of having dementia or caring for a person with dementia, and to understand what ‘living well’ means from the perspective of PwD and Carers. IDEAL conceptualised living well as including satisfaction with life, psychological well-being, and quality of life. The IDEAL programme baseline began with 1,537 people who have difficulties with memory, thinking, or behaviour that may have been described as dementia or an associated condition, and 1,277 family members or friends who provide support.
Study design
Cohort - clinical, Cohort
Number of participants at first data collection
1,537 (PwD)
1,277 (Carers)
Age at first data collection
Varied (PwD)
Varied (Carers)
Participant year of birth
Varied (PwD)
Varied (Carers)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2014
Primary Institutions
University of Exeter
Profile paper DOI
Funders
Economic and Social Research Council (ESRC)
National Institute for Health and Care Research (NIHR)
Ongoing?
Yes
Data types collected
- Interview – face-to-face
- Secondary data
- Interviews or focus groups
- None
- Healthcare data
Engagement
Keywords
