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Quality of Life Mapping (KLIK)
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Sample details

The KLIK programme allows for patients to complete quality of life questionnaires before attending healthcare appointments, of which can then be viewed by the healthcare professionals during the appointment. As of August 2024, 47 centres across the Netherlands use the KLIK service.

Study design
Registry

Number of participants at first data collection

44,552 (users, as of 2024)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Caregivers
Parents
Patients and clinical populations
Dataset details

Country

Netherlands

Year of first data collection

2008

Primary Institutions

Emma Children's Hospital

Links

hetklikt.nu/

doi.org/10.1007/s11136-023-03504-z

Funders

AGIS Health Insurance

Dutch Cancer Society (KWF Kankerbestrijding, DCS)

Wyeth Pharmaceuticals (now known as Pfizer)

Ongoing?
Yes

Data types collected

mentalHealthData

Quantitative data collection

  • Self-report questionnaire – online

Qualitative data collection

  • None

Neuroimaging data collection

  • None

Linked or secondary data

  • None

Features

Engagement

  • Community engagement
  • Community engagement
  • Keywords

    Chronic illness
    Health and wellbeing
    Healthcare access and use
    Quality of life
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