French Childhood Cancer Survivor Study For Leukaemia (LEA Cohort)
The LEA cohort is a dynamic, open cohort studying the determinants of medium and long-term outcomes of patients treated for paediatric leukaemia. The study recruited participants who had a diagnosis of acute leukaemia when they were under 18 years old. Potential participants also needed to be living in France and have received their diagnosis after January of 1980, amongst other inclusion criteria. The study began in 2004 with recruitment from University hospitals in Marseille and Nancy and expanded to include Nice, Clermont-Ferrand, Grenoble, Lyon, Paris-Saint Louis, Paris-Trousseau, Paris-Robert Debré and Saint-Etienne by 2011. As of 2011, over 1,500 cancer survivors have agreed to take part in the study.
Study design
Cohort - clinical
Number of participants at first data collection
1,545 (participants)
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2004
Primary Institutions
Aix-Marseille University (AMU)
Profile paper DOI
Funders
Canceropôle Provence-Alpes-Côte d’Azur (PACA)
French Institute for Public Health Research (Institut français de recherche en santé publique, IReSP)
French National Cancer Institute (Institut National du Cancer, INCA)
French National Research Agency (ANR)
Regional Council PACA
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – unspecified
- None
- None
- Healthcare data
Engagement
Keywords
