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Living With Colorectal Cancer: Patient and Caregiver Experience
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Sample details

This study aimed to investigate the outcome, experiences and quality of life of colorectal cancer patients and their caregivers in Edmonton and Calgary, Canada. Beginning in 2018, the study recruited patients aged at least 18 years with advanced colorectal cancer (aCRC) and their caregivers. At baseline, over 100 participants were included in the study. All patients and caregivers were followed up every 1 to 3 months until the patient died or the study ended. Additionally caregivers were followed up 8 weeks after the death of the patient.

Study design
Cohort - clinical, Cohort

Number of participants at first data collection

131 (participants)

Age at first data collection

≥ 18 years (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Cancer patients
Patients and clinical populations
Dataset details

Country

Canada

Year of first data collection

2018

Primary Institutions

Alberta Health Services (AHS)

University of Alberta

University of Calgary

Links

clinicaltrials.gov/show/NCT03572101

doi.org/10.3390/curroncol31030092

doi.org/10.1200/JCO.2019.37.27_suppl.207

doi.org/10.1136/spcare-2024-005151

Funders

Action Dignity

Alberta Cancer Foundation (ACF)

Canadian Institutes of Health Research (CIHR, Instituts de recherche en santé du Canada, IRSC)

Canadian Partnership Against Cancer (Partenariat Canadien Contre Le Cancer, CPAC)

Government of Alberta

Ongoing?
No

Data types collected

mentalHealthData
dataLinkage
Quantitative data collection
  • Interview – face-to-face
  • Interview – phone
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – online
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Healthcare data
Features

Engagement

  • None
  • Keywords

    Cancer
    Caregiving
    Gastrointestinal cancer (e.g. bowel, colon, gastric cancer etc.)
    Morbidity and mortality
    Pain
    Palliative care
    Quality of life
    Treatment experiences and outcomes
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