MD Anderson Cancer Patients and Survivors Cohort (MDA-CPSC)
The MDA-CPSC was developed specifically to support well-powered studies of clinical outcomes and survivorship in a racially diverse and well-characterized population of newly diagnosed cancer patients in the United States of America. The cohort brings together the Patient History Database (PHDB) with core epidemiology data, the Blood Biospecimen Research Resource (BSRR) for biospecimens, and an institutional electronic health record (EHR) and Tumour Registry that houses clinical, pathological, laboratory testing, treatment, and follow-up data. The MDA-CPSC enrols all qualifying new MD Anderson patients who are 18 years of age and over, diagnosed within 1 year of registration, and United States residents. While the catchment area for MD Anderson encompasses the state of Texas, many patients are admitted from other states. Based on self-report of race/ethnicity, the majority of patients self-identified as White, with 7.26% Hispanic and 6.97% Black.
Study design
Registry, Cohort - clinical
Number of participants at first data collection
155,155 (participants as of May 2015)
Recruitment is ongoing
Age at first data collection
≥ 18 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
Cancer patients across the United States and across the state of Texas.
Sample features
Country
Year of first data collection
1999
Primary Institutions
University of Texas MD Anderson Cancer Center
Links
No website available
Profile paper DOI
Funders
State of Texas Tobacco Settlement Funds
University of Texas MD Anderson Cancer Center
Ongoing?
Yes
Data types collected
- Secondary data
- Self-report questionnaire – online
- Self-report questionnaire – paper or computer assisted
- None
- None
- Census data
- Healthcare data
- Mortality data
Engagement
Keywords
