Relationship between MENtal health and eDucation in Autism - a survey during and after COVID-19 lockdown (MEND-A)
MEND-A is a qualitative study investigating the benefits and challenges faced by autistic and non-autistic young people and their caregivers associated with pandemic-related school changes during the COVID-19 pandemic in England, Scotland, and Wales. Caregivers of autistic and non-autistic children and their child or children aged between 11 and 18 years were invited to participate regardless of whether the child had a suspected or confirmed autism diagnosis. This resulted in a cohort of over 70 caregivers of autistic and non-autistic young people in addition to 30 autistic and non-autistic children at baseline. Participants were followed-up 3 times during lockdown, prior to the return to school, and after the return to school over 6-9 months.
Study design
Cohort - primary caregiver and child
Number of participants at first data collection
71 (caregivers)
30 (children)
Age at first data collection
11 - 18 years (children)
≥ 18 years (caregivers)
Participant year of birth
Varied (caregivers)
Varied (children)
Participant sex
All
Representative sample at baseline?
No
Sample features
Countries
Year of first data collection
2020
Primary Institutions
City, University of London
King's College London (KCL)
South London and Maudsley NHS Foundation Trust (SLaM)
University of Western Australia (UWA)
Links
asset.nasen.org.uk/Inclusive%20Curriculum%20Day%203%20Presentation%20Slides.pdf
docs.google.com/spreadsheets/d/1pFMUf41qAVl_aKyqBfkA65HYEoPvveWkMrM7ely-i_g/edit
Profile paper DOI
Funders
No funding information available
Ongoing?
No
Data types collected
- Self-completed questionnaire – online
- Qualitative survey
- None
- None
Engagement
Keywords
