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Relationship between MENtal health and eDucation in Autism - a survey during and after COVID-19 lockdown (MEND-A)
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Sample details

MEND-A is a qualitative study investigating the benefits and challenges faced by autistic and non-autistic young people and their caregivers associated with pandemic-related school changes during the COVID-19 pandemic in England, Scotland, and Wales. Caregivers of autistic and non-autistic children and their child or children aged between 11 and 18 years were invited to participate regardless of whether the child had a suspected or confirmed autism diagnosis. This resulted in a cohort of over 70 caregivers of autistic and non-autistic young people in addition to 30 autistic and non-autistic children at baseline.

Study design
Cohort - primary caregiver and child

Number of participants at first data collection

71 (caregivers)

30 (children)

Age at first data collection

11 - 18 years (children)

≥ 18 years (caregivers)

Participant year of birth

Varied (caregivers)

Varied (children)

Participant sex
All

Representative sample at baseline?
No

Sample features

Autism Spectrum Disorder (ASD)
Ethnically diverse populations
Dataset details
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Countries

England, Scotland, United Kingdom of Great Britain and Northern Ireland, Wales

Year of first data collection

2020

Primary Institutions

City, University of London

King's College London (KCL)

South London and Maudsley NHS Foundation Trust (SLaM)

University of Western Australia (UWA)

Links
No website available

Profile paper DOI

doi.org/10.1177/13623613221140759

Funders

No funding information available

Ongoing?
No

Data types collected

mentalHealthData
qualitativeData
Quantitative data collection
  • Self-report questionnaire – online
Qualitative data collection
  • Qualitative survey
Neuroimaging data collection
  • None
Linked or secondary data
  • None
Features

Engagement

  • None
  • Keywords

    Anxiety
    Autism and Autism-like conditions
    COVID-19
    Caregiving
    Childhood
    Education
    Environmental factors
    Sensory difficulties
    Social functioning
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