MyCode Community Health Initiative
Geisinger's MyCode biobanking program started in 2007 and enables the linkage of samples with electronic health record (EHR) data for expansive research purposes. Participation relied on opt-in informed consent, allowing recontact for additional data collection and facilitating the return of clinically actionable results to participants since 2013. By September 2015, over 90,000 Geisinger patients had enrolled, including more than 3,600 pediatric patients via parental or guardian consent, providing a robust dataset for analysis linked to participants' digital health records.
Study design
Registry
Number of participants at first data collection
> 90000 (participants as of 2013)
Recruitment is ongoing
Age at first data collection
Varied (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2007
Primary Institutions
Geisinger
Profile paper DOI
Funders
Pennsylvania Department of Community and Economic Development
Ongoing?
Yes
Data types collected
- Secondary data
- Interviews or focus groups
- None
- Healthcare data
Engagement
Keywords
