Netherlands Autism Register (NAR)
The NAR follows the course and development of people with autism over time. The registry recruits parents of children below 16 years with autism and people with autism aged at least 16 years old from across the Netherlands. Adults without autism and with no familial history of autism are also recruited to form a control group within the cohort. Participants have been followed up annually since baseline data collection. All participants are Dutch-speaking and residents of the Netherlands. Participants self-identified as various ethnicities including Dutch, Indonesian, Moroccan, Turkish, and Surinamese. As of 2024, the register includes over 3,500 participants.
Study design
Registry, Cohort
Number of participants at first data collection
3,700 (participants as of 2024)
Recruitment is ongoing
Age at first data collection
≥ 16 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2013
Primary Institutions
Dutch Association for Autism (Nederlandse Vereniging voor Autisme; NVA)
Vrije Universiteit Amsterdam (VU Amsterdam)
Links
Profile paper DOI
Not available
Funders
Dutch Association for Autism (Nederlandse Vereniging voor Autisme, NVA)
Vrije Universiteit Amsterdam (VU Amsterdam)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Self-report questionnaire – online
- None
- None
- None
Engagement
Keywords
