National Academy of Sciences-National Research Council Twin Registry (NAS-NRC)
The NAS-NRC Twin Registry is a comprehensive registry of White male twin pairs born in the United States of America between 1917 and 1927. All twins in the registry served in the military, largely in World War II (WWII). The registry was established in 1958-1959, shortly after WWII, through obtaining birth certificates for White male multiple births from the years 1917 to 1927 from all states except Arizona, Connecticut, Delaware, Georgia, Maine, Missouri, Utah, Vermont, and the city of New Orleans, thus representing 93% of the United States population at that time. Separate data collection efforts with the NAS-NRC registry include the National Heart, Lung, and Blood Institute (NHLBI) subsample, the Duke Twins Study of Memory in Aging, and a clinically based study of Parkinson’s disease.
Study design
Registry, Cohort - occupational
Number of participants at first data collection
31,848 (participants)
Age at first data collection
Varied (participants)
Participant year of birth
1917 - 1927 (participants)
Participant sex
Male
Representative sample at baseline?
The White male population of the United States in 1958-1959.
Sample features
Country
Year of first data collection
1958
Primary Institutions
Institute of Medicine (IOM; now known as the National Academy of Medicine)
Links
No website available
Profile paper DOI
Funders
National Institutes of Health (NIH)
Ongoing?
No
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Secondary data
- Self-report questionnaire – paper or computer assisted
- None
- None
- Employer data
- Mortality data
- Other government data
- Tax, income & benefit data
Engagement
Keywords
Consortia and dataset groups
