Netherlands Quality of Life and Biomedical Cohort (NET-QUBIC)
NET-QUBIC follows a cohort of over 700 individuals newly diagnosed with head and neck cancer and over 250 informal caregivers across the Netherlands. Participants were recruited from 7 head and neck cancer centres in Amsterdam, Groningen, Nijmegen, Utrecht, Rotterdam, Alkmaar, and Leeuwarden.
Study design
Cohort - clinical, Cohort
Number of participants at first data collection
262 (caregivers)
739 (participants)
Age at first data collection
Varied (caregivers)
≥ 18 years (participants)
Participant year of birth
Varied (caregivers)
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2014
Primary Institutions
Amsterdam University Medical Center (Amsterdam UMC)
Profile paper DOI
Not available
Funders
Dutch Cancer Society (KWF Kankerbestrijding, DCS)
Ongoing?
Yes
Data types collected
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Interview – face-to-face
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – paper or computer assisted
- None
- None
- None
Engagement
Keywords
Consortia and dataset groups
