This study investigates avoidant/restrictive food intake disorder (ARFID) in a cohort of youth aged 9 to 23 years. The sample includes 100 participants meeting full or subthreshold criteria for ARFID, along with a comparison group of 34 healthy controls, all recruited from the greater Boston area, United States of America. Recruitment was conducted through clinical referrals and community advertisements. Baseline data collection began in 2016, and participants have been assessed at three time points—baseline, one year, and two years—using structured diagnostic interviews to examine illness persistence, remission, and diagnostic crossover.
Study design
Cohort, Cohort - clinical
Number of participants at first data collection
100 (patient cohort)
34 (healthy controls)
Age at first data collection
9 - 23 years (patient cohort)
9 - 23 years (healthy controls)
Participant year of birth
Varied (patient cohort)
Varied (healthy controls)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2016
Primary Institutions
Harvard Medical School (HMS) (Academic, United States of America)
Massachusetts General Hospital (MGH) (Healthcare/Medical, United States of America)
Mental Health Center Ballerup (Research, Denmark)
Region Hovedstadens Psykiatri (Mental Health Services in the Capital Region of Denmark) (Healthcare/Medical, Denmark)
University College London (UCL) (Academic, United Kingdom)
Profile paper DOI
Funders
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) (Government, United States of America)
National Institute of Mental Health (NIMH) (Government, United States of America)
Ongoing?
Yes
Data types collected

Engagement
Keywords