Netherlands ME/CFS Cohort and Biobank (NMBC)
NMCB aims to connect research on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome (ME/CFS) with other syndromes that share similar symptoms and impacts, such as long-COVID, Lyme disease and the long-term effects of Q-fever. Participants are over 2,500 adults who live in the Netherlands and have ME/CFS, other similar syndromes or are healthy controls. Baseline data collection began in 2023.
Study design
Biobank, Cohort, Cohort - clinical
Number of participants at first data collection
750 (ME/CFS patients)
450 (healthy participants)
350 (clinical audits)
550 (post-COVID patients)
460 (young adult participants)
Recruitment is ongoing
Age at first data collection
18 - 65 years (participants)
Participant year of birth
Varied (participants)
Participant sex
All
Representative sample at baseline?
No
Sample features
Country
Year of first data collection
2023
Primary Institutions
Amsterdam University Medical Center (Amsterdam UMC)
Links
projecten.zonmw.nl/en/project/netherlands-mecfs-cohort-and-biobank-nmcb-consortium
mrr.mecfs-research.org/en/researchnetworks/B1DTM8CeR1uAKR_x-dDW5A
Profile paper DOI
Not available
Funders
The Netherlands Organisation for Health Research and Development (ZonMW)
Ongoing?
Yes
Data types collected
Quantitative data collection
- Computer, paper or task testing (e.g. cognitive testing, theory of mind doll task, attention computer tasks)
- Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
- Self-report questionnaire – online
Qualitative data collection
- None
Neuroimaging data collection
- Magnetic Resonance Imaging (MRI)
Linked or secondary data
- None
Engagement
Keywords
Consortia and dataset groups
