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Nordic Children and Adults Born Preterm (NORDCAP)
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Sample details

The NORDCAP project studies how preterm birth and maternal pregnancy disorders predict offspring health, well-being, and societal achievements of the offspring from childhood to adulthood. The NORDCAP study population includes all births in Finland during 1987-2023, with approximately 2,100,000 children identified. Also included in NORDCAP is a study of individuals born in Finland from 1987-1990. All participants were identified from the Finnish Medical Birth Register. Both studies use only register-based information.

Study design
Registry

Number of participants at first data collection

~2,100,000 (participants)

Age at first data collection

Birth (participants)

Participant year of birth

1987 - 2023 (participants)

Participant sex
All

Representative sample at baseline?
No

Sample features

Newborns, infants and babies
Dataset details

Country

Finland

Year of first data collection

1987

Primary Institutions

Finnish Institute for Health and Welfare (Terveyden ja hyvinvoinnin laitos, THL)

Links

thl.fi/en/research-and-development/research-and-projects/nordcap-nordic-children-and-adults-born-preterm

thl.fi/en/research-and-development/research-and-projects/the-finnish-1987-90-birth-cohort

Profile paper DOI
Not available

Funders

Academy of Finland

Alli Paasikivi Foundation (Alli Paasikiven Säätiö)

Diabetes Research Foundation (Diabetestutkimussäätiö)

Emil Aaltonen Foundation (Emil Aaltosen Säätiö)

European Commission

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Education data
  • Employer data
  • Healthcare data
  • Mortality data
  • Other government data
  • Social care data
Features

Engagement

  • None
  • Keywords

    Health and wellbeing
    Intergenerational
    Pre-pregnancy
    Pregnancy outcomes
    Premature birth
    Resilience
    Risk factors

    Consortia and dataset groups

    LongITools
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