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Neonatal Neurobehavior and Outcomes in Very Preterm Infants (NOVI)
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Sample details

The NOVI study aims to understand the neurodevelopmental trajectories of very preterm infants. Between 2014 and 2016, mothers aged 18 years and above and their infants born at less than 30 weeks of gestational age were recruited from nine neonatal intensive care units across seven cities in the United States of America. Data were collected at neonatal unit discharge and through annual follow-ups from ages 2 to 5. The study plans to continue tracking participants until infants are 7 years old.

Study design
Cohort - primary caregiver and child

Number of participants at first data collection

704 (infants)

601 (mothers)

Age at first data collection

Birth (infants)

≥18 years (mothers)

Participant year of birth

2014 - 2016 (infants)

Varied (mothers)

Participant sex
All

Representative sample at baseline?
No

Sample features

Children and young people
Mothers
Newborns, infants and babies
Premature babies
Dataset details

Country

United States of America

Year of first data collection

2014

Primary Institutions

Brown University

Links

doi.org/10.1038/s41390-022-02230-5

Profile paper DOI

doi.org/10.1111/jcpp.14074

Funders

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

National Institute of Mental Health (NIMH)

Ongoing?
Yes

Data types collected

neuroImagingData
mentalHealthData
Quantitative data collection
  • Interview – face-to-face
  • Physical or biological assessment (e.g. blood, saliva, gait, grip strength, anthropometry)
  • Secondary data
  • Self-report questionnaire – paper or computer assisted
Qualitative data collection
  • None
Neuroimaging data collection
  • Cranial ultrasound
Linked or secondary data
  • None
Features

Engagement

  • None
  • Keywords

    Biological samples/biospecimens
    Environment
    Human development
    Mental health
    Neurodevelopment
    Physical health

    Consortia and dataset groups

    Environmental influences on Child Health Outcomes (ECHO)
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