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New South Wales Cancer Registry (NSWCR)
New South Wales Cancer Registry logo
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Sample details

The NSWCR is a population-based registry that maintains records of people with cancer in the Australian state of New South Wales (NSW). The data captured within the NSWCR provides useful insights into the impact of cancers and how this has changed over time. Notification of new cancer cases and cancer deaths is required under the Public Health Act 2010 and are included in the NSWCR. The registry contains demographic, incidence, and death details for people diagnosed with cancer in NSW since 1972. In total, over 2.5 million cancer notifications have been received since 2015.

Study design
Registry

Number of participants at first data collection

> 2,500,000 (cancer notifications received since 2015)

Recruitment is ongoing

Age at first data collection

Varied (participants)

Participant year of birth

Varied (participants)

Participant sex
All

Representative sample at baseline?
Cancer diagnoses and cancer-related deaths in New South Wales, Australia.

Sample features

Cancer patients
Dataset details

Country

Australia

Year of first data collection

1972

Primary Institutions

Cancer Institute of New South Wales (NSW)

Links

cancer.nsw.gov.au/research-and-data/cancer-data-and-statistics/request-unlinked-unit-record-data-for-research/nsw-cancer-registry

doi.org/10.1186/s12889-021-10375-x

Profile paper DOI
Not available

Funders

Cancer Institute of New South Wales (NSW)

Ongoing?
Yes

Data types collected

dataLinkage
Quantitative data collection
  • Secondary data
Qualitative data collection
  • None
Neuroimaging data collection
  • None
Linked or secondary data
  • Census data
  • Healthcare data
  • Medical birth registry
  • Mortality data
  • Social care data
  • Tax, income & benefit data
Features

Engagement

  • Community engagement
  • Keywords

    Cancer
    Cancer registry
    Diagnostic information
    Disease prevalence
    Healthcare access and use
    Morbidity and mortality
    Treatment experiences and outcomes
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